Monday, July 23, 2012

Dear Diabetes.

Dear Diabetes,

I hate you. Not like I hate coconut or the stomping of feet in the apartment above us. My hate for you is deep. Like the hate for someone who hurts innocent children. The hate for someone who takes precious childhood memories away. The hate for someone that sucks the happiness out of the day in one split fleeting second. You, diabetes, are the most hated of all.

But guess what? You cant win. You can try to take our childs sweet innocent memories and replace them with horrible ones of finger sticks, injections, and constant doctors visits. And you can keep on trying. But I will not let this go down without a fight.

I will give my son the most normal wonderful childhood that anyone can hope for. I will replace your pain with joy, frustration with peace, hate with love.

ALL children deserve to have a childhood and I will fight you to the death to make it so. I don't care if it takes every ounce of life within me. You will never win.

Sincerely,

Your WORST Enemy

Mr. Cason.

My 1 year old has had quite the hard life. He was born 5 weeks early, spent 3 weeks in NICU, 2 of those being intubated. He has severe food allergies and is developing new ones everyday!

Over the past month or so he has been doing something that scares the crap out of me! He will get mad and hold his breath until he turns blue. During that time his body is stiff, hands in fists, toes curled, and his back is arched. It looks like he is having a seizure!

Friday night he got really mad at me because his food was all gone and he wasn't ready to be done! He did the breath holding bit, but this time it was different. He didn't breath for over a minute. His eyes were rolled back in his head and I panicked! I called 911 and the poor lady couldn't understand a word I was saying! The ambulance got there within seconds, and right as thy came up he started breathing again.

Today we made a trip to the pedi to get to the bottom of it. He was diagnosed with breath holding spells. The dr is referring him to a neurologist, and has ordered an EEG with sedation. (This makes me nervous because he's had seizure like activity while on Ativan and Versed while in the NICU!)

The dr also did bloodwork and it came back positive for Celiacs disease. We also added a new allergen ... Milk! :(

This is so much to take in and I'm feeling super overwhelmed right now!

Monday, July 9, 2012

Yikes.



I can not believe it's been 2 whole months since I've posted anything! I guess we've been a little busy!

Callan has been having crazy high numbers lately. I'm hoping it's from traveling.  We've pretty much been going going going since April!  In the past 3 months we've been to 6 states, "lived" in a hotel for 2.5 months, and took a trip to visit my family in California (where we also got to visit Yosemite, & Monterey!)  I'm hoping things start settling down, so we can get back on track.  BUT we are still living in an empty home, waiting to go get our stuff from storage in New Mexico!  We've been sleeping on air mattresses for almost a month.  I know I can't wait to get my bed up here to Wyoming!

We've also added 2 more allergens to Casons list. Peas & fish. They were both pretty bad reactions, but luckily did not require the epi-pen!  Although last month we had to for the very first time.  Someone touched him who more than likely had ranch dressing on their hands. (Ranch=Mayo=Eggs!)  His lip swelled up, and his face started breaking out in welts. My husband gave him the shot and it was pretty scary!  His face turned blue, and almost immediately cleared up. I'm hoping we don't have to use it again, but I'm pretty sure we will have to.  Cason is also going through a tantrum stage. (He's only 1!)   If he gets mad he will hold his breath, turn blue, and almost pass out! It is so scary!  He's my youngest of 5 and I've never had to deal with this before!

I hope y'all are doing okay!

Callans first time at the beach! :) 

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