Wednesday, February 29, 2012

Blast-off to a cure!

My husband made this awesome flyer for our JDRF walk ...


Monday, February 27, 2012

Stranger Danger.

In the past year I have had enough stupid questions and advice from strangers to write a book.  I know that they mean well, are really probably trying to help, and are obviously concerned by asking me questions.  But it!   

Here is my top ten list of questions and comments that I've gotten from strangers in the past year ...

1.  What's wrong with your baby?  [Asking about Cason & his eczema. I would never just bluntly ask someone what was wrong with their child.  Would you go up to someone with a child in a wheel chair and ask what is wrong with them? I sure wouldn't!]

2. Oatmeal/Lotion/Baby oil/Foot Fungus medicine/Menthol/Steroids will cure eczema. [Obviously some of these things will make it better, but the only thing that has pretty much taken it away was finding out what he was allergic to and taking these things out of his diet.]

3. A stranger started up a conversation with me at a restaurant and it went a little like this ...

Stranger: Hi. Does he have eczema?
Me: Yes, he does.
S:  You need to give him an oatmeal bath, that will cure it.
M: I can't. He's allergic to oatmeal.
S: That's the stupidest thing I've ever heard. No one is allergic to oatmeal.
M: Actually, he is. Oatmeal has gluten in it. He started wheezing, and his lip swelled up when he consumed gluten for the first time.  I'm not rubbing it all over his body.
S:  You need to just do it.  It's better for him to not be itchy. If he can't breath, just take him to the hospital!  
M: [I had nothing more to say at this point. I think I just blankly stared at her until she went on to the next topic.]

4. The same conversation with the very same stranger ...

S: I saw you doing something with blood and his finger. [Talking about Callan.] What were you doing?
M: I was checking his blood sugar. He has diabetes.
S: And you do this in public?
M: Yes. I need to check his blood sugar every time before he eats.
S: Do you give him shots?
M: Yes. He gets a shot every time he eats, or if his blood sugar is too high.
S: Do you do this in public?
M: Yes.
S: That's disgusting. You should take him into the bathroom to do that. No one wants to see it. You'll scare the other kids.
M: [Biting my tongue so hard that it nearly falls off because if I don't I will surely say something horrible, and maybe go to jail for brutally assaulting someone.]

5. Someone who is 2 years old shouldn't have diabetes. You must be feeding him junk.

6. That's the stupidest thing I've ever heard in my life! You need to get a new doctor! [After educating someone that Type 1 Diabetes is an autoimmune disorder and isn't caused by lifestyle or diet.]

7.  You should just give him cinnamon!  That cured my diabetes. [An older woman at a restaurant.]

8. Your baby has eczema because you don't take care of him.  

9.  I guess you should have stopped after having 3 kids since your youngest two have so many problems.

10.  Of course he has diabetes, look how FAT he is!!  [Callan is almost 3 years old, 42", and 43lbs. He is big, not fat.]

So, is this only happening to me, or do y'all hear the same things?? 


Sunday, February 26, 2012

Happy TWELFTH Birthday Zacky Do Da!

Oh gosh. It's hard to even write this post.  My oldest, my first baby, is twelve years old.  How is that even possible?!  

I remember the day like it was yesterday.  I was young, and naive. I knew I was in labor, but I was scared. I thought if I ignored it, it would just go away. HA!   I got to the hospital at 5:30am on February 26, 2000.  The nurse thought I wasn't really in labor, but they were going to keep me and do my c-section that day anyways. . since I was there.  My c-section was actually scheduled for leap day!  Zackary was breech. They had tried doing an external cephalic version (turning him) but it didn't work.  Come to find out [after my c-section] that I have a bi-cornuate uterus which means that my uterus is basically shaped like a heart. Anyway, my water broke at 8am, and he was born at 11:32am.  He weighed 6lbs 12oz, and was 18.5" long.  He was such a good baby, but also suffered from asthma & eczema. [Like Cason!] 

I always sang a song to him that I made up.  A remix version of Zippity Do Da. [Thus the nickname Zacky Do Da]     "Zackity Do Da. Zackity Aye. Oh my my this is Zackarys Day. Plenty of sunshine coming his way! Zackity Do Da. Zackity Aye."   He gets really embarrassed when I sing it now.  But I can't help it!  He will forever always be my Zacky Do Da.

Why I love my Zacky:

1. He is so sweet. He picked up dog poop for people over the summer just to buy his brother a birthday present with his OWN money.

2. He is an amazing artist. He wants to design video games when he grows up!

3. He's still a mamas boy, and would sleep with me if I let him.

4. He doesn't follow the crowd. He likes what he likes and that's how it is!

5. He is an awesome rock climber!

6. He has unique hair styles. He's had a mohawk, faux hawk, super long hair, and went completely bald! He has bright red hair too.

7. He is an entrepreneur. He is always trying to figure out ways to make money.

8. He is so smart.

9.  He has an awesome sense of humor. He can always make me laugh!

10.  He is such a great big brother!

Happy 12th birthday sweet boy!  The time sure has flown by. I love you so so so much!

[This was supposed to post yesterday, on his birthday, but for some reason it didn't! So it's a little belated!]


Thursday, February 9, 2012

Happy FIRST Birthday Sweet Cason!

Yesterday my last precious baby turned 1. 

To say he's had a hard time is an understatement.  At 18 weeks pregnant we found out that there was an issue with my placenta. It had detached, and reattached.  It was too low, and shaped weird.  It's called a circumvallate placenta.  I was pretty much on bedrest from 18wks until I had him.  I couldn't keep any food down, so I lost tons of weight.  I also had way too much fluid. At 28wks, I was measuring 42wks!  The only good thing about this was being able to see my baby on the ultrasound screen once a week.

3D Ultrasound taken at 34 weeks.
Cason was born at 35 weeks.  Even though he weighed a whopping 6lbs 14oz, he still had to go to the NICU.  When he was born he swallowed some [clear] fluid, and developed pneumonia.  He was on a cpap at first, but eventually had to be intubated. He was also on a brainz monitor for quite some time because they thought he was having seizures. [It was really a reaction to the Ativan & Versed they were giving him.] Seeing my baby like this was one of the hardest things I have ever had to go through. He spent 3 very long weeks in NICU, until he finally got to come home. 

1st picture. Before he was whisked away to NICU.

Day 1 in the NICU.

My first time holding him!

A week away from going home.

Shortly after coming home he developed severe reflux. He was projectile spitting up after every feeding no matter what I did.  Then he developed a rash on his little cheeks. I took him to the dr KNOWING it was eczema, because my oldest had had this as well. They convinced me it was baby acne.  A few weeks later we relocated to another state, and I KNEW it was eczema then. He had patches all over his poor little body.

He has been on so many medications, and creams. Now every morning when he sees the medicine dropper he gets excited. How sad is that!!  About a month ago he was diagnosed with some allergies after having an allergic reaction to something.  We wound up in the ER, and he was given epinepherine.  As of right now he has an epi pen and is allergic to eggs, soy, gluten, peanuts, and dog and cat dander. : /  He is also having to have breathing treatments regularly.

Even though his first year has been totally stressful and insane, I wouldn't change anything. Don't get me wrong, I would take everything away from him and give it to myself in an instance. But I couldn't imagine my life without this sweet little boy in it.  He has completed our family.

Happy FIRST birthday my sweet baby.  I hope you have a HEALTHY second year.

Things I LOVE about CASON:
1. He says dada when I say mama, and then laughs.
2. He thinks he's so funny, and fake laughs all.the.time!
3. He has the most sweetest smile.
4. He is a fish!  He would live in the water if he could.
5. He gives me random kisses.
6. He is scared of monkeys and the vaccuum.
7. He won't drink from a sippy cup, but he can drink from a big cup like it's nobodys business.
8. The way his face lights up when I get him up in the morning.
9. The way he plays with the door stopper.
10. How he is the fastest crawler in the world when he hears the bath water.


Wednesday, February 1, 2012

A scary night.

This all started last night. I did the 8pm check. It was 457. Ugh!  I gave him his correction, and my husband re-checked at 2am. 432!!  By breakfast he was at 398.  So pretty much all day today he's been in the 400's.  I tested for ketones, and they were moderate.  So we flushed him with fluids, and I called his endo.  They wanted us to call at 6pm and let them know what his bg was as well as his ketones to see where we would go from there.  By 6pm he was 275, and there was a small amount of ketones. Thought we were good to go!

Think again.  Callan started throwing up.  Then it seemed like he was going in and out of consciousness.  I was freaked.  I rushed him to the ER.  I told the guy at the desk that he had diabetes, had high bg, and ketones all day today and now he is throwing up and lethargic.  He said "Okay. So he has type type dye uh beh tes?"  This guy didn't have an accent.  :/

We sat down to wait, and Callan started throwing up again.  I ran up to the desk, slammed my hand down and screamed "My son has diabetes.  He had high bg and ketones all day. He is throwing up and lethargic. He needs to be seen RIGHT NOW!"   They rushed us in.

My poor baby.

After an ABG, bloodwork, and some urine tests everything came back NORMAL. He didn't have any ketones, but did have some glucose in his urine.  His bg was 108 according to the ABG.  They pretty much acted like I was a crazy mad woman who brought her son in for no reason at all.   I know that kids usually act better when you take them to the dr, but come on!  This is extreme.  For my son to be able to take away his high bg and ketones!  Why can't he do this on a daily basis? :P

Callan after the IV fluid and oxygen. My silly happy guy!

Callan is home now, and doing fine.  After some IV fluid and oxygen he was back to his silly little self.   I'm pretty sure that he is getting sick, since his brother was sick.  But his brother never threw up, so I don't know where that came from.  This will be our first sickness after being diagnosed.  I hate you diabetes.

There was an error in this gadget