Tuesday, December 13, 2011

It's been a while.

I feel like I haven't posted in for.ev.er.  And it's probably because I haven't!  Things are just super busy around here.

Callans blood sugars have been great.  We finally have an appointment with a new endo on the 3rd. It's a 3.5hr drive one way, but I will drive as far as it takes to get my baby the medical care that he DESERVES!

Cason (our 10 month old baby) was put into Occupational & Speech therapy.  At 9 months old he wouldn't put any pressure on his feet, couldn't sit up, and pretty much was like a newborn.  I knew that he could be a little delayed because he was a preemie, but I called for help.  Within the first week he was crawling!! He is now pulling himself up and putting pressure on those little tootsies. The other morning I walked into his room to get him up and he was playing ON THE FLOOR.  He somehow got out of his crib, but didn't get hurt! (Thank GOD!  We have all tile floors so I can't even fathom the what ifs that could have happened!) He still will not sit up without support, but they said it's because he is super uncomfortable from his severe reflux. He also has severe eczema which doesn't help either. I could not imagine being extremely itchy 24/7. :(

My sweet Cason.

At Casons first appointment, they asked about Callan.  They did the evaulation for him and decided that their services would benefit him as well.  So now we have a speech therapist, a teacher, and a regular therapist coming weekly to help him. He is really angry all the time, and will flip at the drop of a hat if something isn't exactly the way he wants it to be. I don't know if it's because of the diabetes, or what .. but hopefully the therapist will be able to help some how. I'm not sure what they will talk about since Callan is only 2 and isn't able to totally communicate yet. He was also able to be put in swimming lessons (for free!) through their program!!  He loves the water, so this is such a good thing for him! But this is also once a week.

Mr. Callan, who never smiles.

Our 4yr old, Corbin, was also put into speech therapy through the school district here. That is a twice a week deal.

Corbin, deep in thought.

Our life is so busy right now!


Tuesday, November 29, 2011

Happy {belated} Thanksgiving!

I hope y'all had a wonderful Thanksgiving.   Ours was great!  Callan did really well after dinner, and I thought we made it through free and clear.  {insert evil laugh here}   But y'all know how diabetes is, and it just doesn't care.  

Callan was stuck in the 300-400's for two freaking days afterwards.  I am frustrated. I am broken. I feel like a failure. This is even more stressful for me because we are pretty much without an endo right now.  Ours has abandoned us because we are being referred to another, and the other isn't returning our calls.  He's only had this for a month and a half. 

HOW AM I SUPPOSED TO CHANGE THINGS ON MY OWN?   I feel like I am failing my son.


Monday, November 21, 2011

Hot Diggity Dog

My boys love going to Sam's Club. It means samples + a gigantic hot dog.  As soon as we pull up they are usually screaming "I NEED A HOT DOG!"  So, we go in and head straight to order them what their little hearts desire. I walk up, and look for nutritional information near the counter. There isn't any. I noticed on the menu board it says "Nutritional Information Available Upon Request." So I ask the young girl for that information. The conversation goes a little like this:

Me: Hi, Can I get your nutritional information pleeeaassee?
Her: We don't have any.
Me: Right up there on your board it says it's available upon request, and I am requesting it!
Her: Yeah. Hahaha. I don't even know why that says that. What did you want to order?
Me: Well, I need 2 hot dogs, but I need to know the nutritional information for the bun.
Her: Oh, don't worry. They are beef hot dogs.
Her: Um, Do you want me to get my manager?

Do you freaking think! If you know me in real life, you know that I don't like confrontations. I am quiet, and usually just let things slide off my back. But my baby wants a hot dog, and dangit he is going to get a hot dog!

I am still new to diabetes. I do not feel comfortable with just guessing how many carbs there are in a super sized hot dog bun. I'm still so scared of under dosing, or over dosing. So the manager comes up .. gives me the same spiel as her. I was pretty much yelling at this point. I explained to him that my son has diabetes, he wants a hot dog, and I need to know how many carbs are in a bun so that I can give him the right amount of medicine. He eventually looked it up on the computer.

36. I am going to tattoo that number on my body just in case we ever go to Sam's again.


Tuesday, November 15, 2011

Diabetes Fact Sheet

{Taken from the JDRF website}

Type 1 Diabetes Facts
Type 1 diabetes is an autoimmune disease in which the body's immune system attacks and destroys the insulin-producing cells of the pancreas. While its causes are not yet entirely understood, scientists believe that both genetic factors and environmental triggers are involved.

Affects Children and AdultsType 1 diabetes strikes people at any age. It comes on suddenly, causes dependence on injected or pumped insulin for life, and carries the constant threat of devastating complications.

Needs Constant AttentionTo stay alive, people with type 1 diabetes must take multiple insulin injections daily or continually infuse insulin through a pump. They must also test their blood sugar by pricking their fingers for blood six or more times a day. While trying to balance insulin doses with their food intake and daily activities, people with this form of diabetes still must always be prepared for serious hypoglycemic (low blood sugar) and hyperglycemic (high blood sugar) reactions, both of which can be life-limiting and life threatening.

Not Cured By InsulinWhile insulin injections or infusions allow a person with type 1 to stay alive, they do not cure diabetes, nor do they necessarily prevent the possibility of the disease's devastating effects, which may include: kidney failure, blindness, nerve damage, amputations, heart attack, stroke, and pregnancy complications.

Difficult to Manage Despite paying rigorous attention to maintaining a meal plan and exercise regimen and always injecting the proper amount of insulin, people with type 1 diabetes face many other factors that can adversely affect efforts to tightly control blood sugar levels. These factors include stress, hormonal changes, periods of growth, physical activity, medications, illness/infection, and fatigue.

  • As many as three million Americans may have type 1 diabetes.
  • Each year, more than 15,000 children and 15,000 adults - approximately 80 people per day - are diagnosed with type 1 diabetes in the U.S.
Warning Signs
Warning signs of type 1 diabetes may occur suddenly and include:
  • Extreme thirst
  • Frequent urination
  • Drowsiness or lethargy
  • Increased appetite
  • Sudden weight loss
  • Sudden vision changes
  • Sugar in the urine
  • Fruity odor on the breath
  • Heavy or labored breathing
  • Stupor or unconsciousness

Monday, November 14, 2011

{Happy} World Diabetes Day!

Happy World Diabetes Day!

It just doesn't seem right to put happy in front of diabetes.  I am not happy that my child, or any child (or adult) has to go through this. BUT I am happy that at least there is a way to manage it.  

This year we participated in the World Diabetes Postcard Exchange.  We mailed off our postcard this morning and a nice family in Texas should be receiving it shortly!  My husband made it himself. 

On the back of the postcard we wrote a nice paragraph from Callan.  We can't wait to get our postcard in the mail!   What are y'all doing to "celebrate" today?

Wednesday, November 9, 2011

Diabetes Resource Page

[This is a guest post from the Diabetes Resource Page.  I just did a featured interview with them (my first interview ever) and you can see that here.]

In support of American Diabetes Month, we have just launched a brand new site, Diabetes Resource Page- a destination for those living with diabetes and their families to learn more information, get expert advice, share personal stories, and gain access to an array of offers and free samples from some of our partners, such as Lifescript, Remedy Life, and P&G, to name a few.

We are reaching out to you, diabetes bloggers, educators, advocates, and all those whose lives have been touched by this disease, to become part of our community by sharing your story. Partner with us in reaching out to the 25.8 million people currently living with diabetes. Your story could change a life.

In addition to coupons, offers, and freebies on all the brands and products you know and trust, Diabetes Resource Page is about providing a platform of communication with so many others out there just like you, and offering you the opportunity to be an active part of a growing network of support. Diabetes Resource Page is about inspiring a dialogue amongst diabetes patients and families across the country, and joining together in the fight to stop this disease. With 25.8 million people currently living with diabetes, no one is alone in this.

If you would like to be featured in an interview or become a Diabetes Resource Page contributor, please contact Diabetes Resource Page editor, Sarah Abfalter, at sarah.abfalter@diabetesresourcepage.com.


Yes, that's right. I'm going to brag. :)

As of yesterday, Callan, my TWO YEAR OLD type 1 baby can check his bg all by himself.  Of course he doesn't know how to read the number .. but he can put the strip in, prick his finger, and the whole shabang.

Then after lunch yesterday he said "I shoot me. I wanna do it."  I didn't understand what he was saying at first .. but then I realized that he was asking to give himself his shot.  So I dialed that baby up, handed it to him, and he gave himself a shot, in his leg of all places!  (He really prefers arms)

I am so proud, my heart is just bursting.  I know it sounds kind of weird to say, but if I had to pick any of my kids to deal with this, I know Callan would be my choice.  He's so strong, and tough ... except when it comes to fish!   Had to share this. :)

Wednesday, November 2, 2011


That's how I've felt all day.  I guess it's finally hitting me that this {diabetes} isn't going away. It will be here, forever.  It's a sad reality.  My little guy shouldn't have to endure this, let alone any other child.  I wish I could be as strong as him sometimes.

Tuesday, November 1, 2011

Happy {belated} Halloween!

We did it.  We survived our very first Halloween, and not even a month after being diagnosed! We started off the morning with a breakfast of champions.  Biscuits & gravy with {plastic} spiders hidden in the gravy.  [The only thing I didn't get a picture of!]

For lunch we had Mummy Dogs, Spider Eggs, and Zombie Teeth:

Our dinner was Mummy Meatloaf, Ghost Mashed Potatoes & Pumpkin Coins (aka carrots).  {We took the noodles off of the meatloaf before eating it .. we're going for looks here!}

By the time dinner was done, we were rushing out the door to meet {for the first time} our new friends who have a son who is diagnosed with type 1.  We spent the evening trick or treating, and then hanging out!  It was so great to be around people who truly understand what you are going through! 

Batman aka Corbin

Spiderman aka  Callan {my d. baby}
Flash Gordon aka Cason

Batman & Spiderman waiting for some loot!
Spiderman {Callan} is trying to just walk on in and get the candy for himself.  He is soo patient.  We let them each choose 10 pieces of candy last night to keep.  The rest was given up as an offering to The Great Pumpkin. I was a little worried when they woke up that they would be sad that their candy was missing.  But who could be sad with cool new toys like Optimus Prime & Bumblebee!  My plan was successful. :) 

I also want to say Happy National Diabetes Awareness Month!  I never thought that I would be so passionate about diabetes! 

Tuesday, October 25, 2011

I messed up.

I have been beating myself up for two days now.  Yesterday morning 2 of my boys had a doctors appointment.  My husband had left to go out of town, and I was rushing to get everyone ready, everything packed, and out the door and there on time.  6 shots, and 2 screaming boys later we made it home in time for lunch.

I check Callans bg.  It's 498.  Immediately my mind goes into overdrive.  HOW? WHY?!? I gave him a snack at the drs, but he was running around like a mad crazy man .. surely that would have not made it that high.  AND THEN I REALIZED ... I forgot to give him his Novolog after breakfast. :/

I started crying. I felt horrible. How could I, HIS MOTHER, forget this?!?  This is SO important!  How horrible am I? :(

I eventually got it back down, and there were no ketones, so everything was okay.  I just felt horrible.  BUT I can't beat myself up about it anymore. It happened. There isn't anything I can do about it now.  The only thing I can do is learn from this and permanently tattoo a reminder on my hand and forehead.

{PS: I was seriously not going to post this for fear of what y'all might say.  But I'm just going to go out on a limb and hope that y'all will have some sympathy for this newbie.}

Sunday, October 23, 2011

The DREADED Halloween

Before having a child diagnosed with type 1, I could never even have fathomed dreading Halloween. How do all my fellow d'baby moms deal with this "holiday"?  This will only be Callans' 1st Halloween where he could actually go trick-or-treating.  I am dreading the thought of taking him to the parties we've been invited to, let alone letting him go door to door begging for his bg to shoot up to unfathomable heights.

I have been googling like a mad man, trying to find alternative ideas.  I think I'm on to something.  Do y'all remember the book/movie "It's the Great Pumpkin, Charlie Brown" by Charles Schulz?

 So, some other moms in blogland have put this book into action.  After trick-or-treating they have their children pick out a small amount of candy.  Then they leave the rest of their stash out for the Great Pumpkin to take.  The next morning the kids wake up and there is a small gift in place of their loot 'o' candy! 

I am planning on doing this with my kids this year.  Luckily I still have littles young enough to not have experienced gorging on tons of candy.

What do y'all think?  How do you deal with the candy with having a type 1 child?

Friday, October 21, 2011

The Endocrinologist

I'm not sure that I really like ours.  He's the closest one to us, and that's still almost an hour away.  He is also the only pediatric endocrinologist which means he's always booked.  Right now we are on the phone with him every night.  Giving him the numbers for the day, telling him what we did or didn't do, and then adjusting his long term insulin that way.  It kind of makes me feel a little uneasy that he isn't seeing us face to face and helping us through this.

Last week I got a letter in the mail from his office.  It was letting us know when OUR VERY FIRST appointment would be.   We do not see him until April 2, 2012!   Does that seem odd to anyone else?  Someone newly diagnosed with Type 1 and not even being seen until 6 months later?!?  My pediatrician wants us to switch to another one .. but that would mean a 3 hour drive. 

How often do y'all see the endocrinologist?  What is the normal waiting period?

Thursday, October 20, 2011

Sometimes I feel like I don't know what I'm doing

Last Friday I took the boys out to a playgroup. Before we left Callans bg was 120. About 30 minutes after we had gotten there I noticed him acting strange. He was super aggressive, screaming, yelling, hitting and he even bit his brother. So I checked his bg there and it was 488! I went into panic mode and just started bawling. :( The other moms didn't know what to do or say.  I was trying to get control of Callan, while telling Corbin (my 4yr old) that we needed to leave.  They were both throwing fits, and it was so hard!!  I pretty much sprinted out of there ugly crying "I'm so sorry! He has diabetes!"  

The past few days his bg has been in the 70's - 80's at every test.  I'm not doing anything differently, and so I have no clue why his bg was so high last week and now it's pretty steady.  

Is he going through his honeymoon period?!  Any advice for the craziness that comes with having a 2 year old (think terrible 2's) with a high bg reading? 

Wednesday, October 19, 2011

{2011 is for the birds}

I have finally started a blog.  There is just too much going on, and I feel like my mind is going to explode if I don't get it all out!  The main point of starting this blog is to connect with other families that are going through the same thing as us. (i.e. Type 1 Diabetes) But I feel compelled to share our year [at a glance] with you.

February 8th, 2011:  Our youngest Cason came into this world at 35 weeks.  He weighed 6lbs 14oz, but when he was born he breathed in some [clear] fluid and developed pneumonia.  He had to stay in the NICU for 3 weeks!

March/April 2011:   This was both good and bad!  My husband was promoted, and we were forced to move from  West Texas to New Mexico. It was an opportunity that we couldn't turn down, but I miss all of my friends there so much!

July 2011:   Our youngest son, Cason, has severe eczema. Nothing was helping. We had to make the hard (and easy at the same time) decision to adopt out one of our family members. I really miss this big guy. (He was just a year old at the time this picture was taken. He's a Fawnequin Great Dane.)

August 2011:  My grandfather was diagnosed with lung cancer. I rushed to California (with 3 kids, in a car, alone) to visit him.  On the way back home to New Mexico our brakes went out in the middle of no where. I was alone, with 3 kids. My cell phone wouldn't work. It was horrible!  We were stranded in Arizona for 3 days before being able to rent a car, and make it back home.  It would have cost more to fix the car then what it was worth, so that meant an unexpected purchase of a new car. :(

September 3, 2011:  My grandpa passed away.  I was unable to make it back for his funeral because of our new car purchase. This is still haunting me. :(

October 6, 2011:   We had noticed our 2 year old, Callan, was going through diapers like crazy. On this particular day he had gone through 20 diapers and had maybe 3 drinks. I googled and the first thing that came up was diabetes.  I kind of shrugged it off, thinking this could NOT happen to me, and decided to be safe and take him to the ER. (Our pediatrician was closed that day.)  The ER doctor wanted to let him go because he was acting fine. He was running around, playing, wasn't acting crazy or anything!  He ran some tests and Callans blood sugar was 1102!  He was in dka.  We were rushed by ambulance to a hospital an hour away and he spent 3 days in PICU.  He was diagnosed with Type 1 Diabetes. We are still adjusting.

Last week: I have been trying to start this blog since we got out of the hospital, but something always steals me away.  I had just registered the name (we do hard things .. because c'mon .. we do .. we don't have a choice!) and I heard my 4 year old screaming.  He had snuck a sharp knife into his room before nap time, and was trying to open a box. 4 year old + knife = not good!  ANOTHER trip to the ER within a week of each other!  The nurses kept asking "Weren't you guys just here?" Ohhh yes. Get to know us. I'm sure we will be here a lot.

Well, if you have made it this far, thank you!  I can NOT wait for this year to be over.  I promise I'm not a complainer .. I just really needed to get that all out!   I'm really really hoping to be able to connect with other families dealing with Type 1 Diabetes through this blog!

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